Leading Patient Advocacy Groups Stand Together to Oppose American Health Care Act

Legislation would leave millions with inadequate, unaffordable care as they battle chronic and other major health conditions

May 02, 2017 Categories: Advocacy News

WASHINGTONMay 1, 2017 -- On behalf of more than one hundred million Americans battling chronic and other major health conditions, the following coalition of 10 patient organizations remains united in its opposition to the American Health Care Act (AHCA):

  • American Cancer Society Cancer Action Network
  • American Diabetes Association
  • American Heart Association
  • American Lung Association
  • Cystic Fibrosis Foundation
  • JDRF
  • March of Dimes
  • National Organization for Rare Disorders
  • National MS Society
  • WomenHeart: The National Coalition for Women with Heart Disease

In March, our patient advocacy organizations collectively urged Congress to ensure that any changes made to the Patient Protection and Affordable Care Act (ACA) provide affordable, accessible and adequate coverage and do not result in a loss of coverage for any Americans. The AHCA would do the opposite, causing at least 24 million Americans to lose health insurance, according to the non-partisan Congressional Budget Office.

As introduced, the bill would profoundly reduce coverage for millions of Americans—including many low-income and disabled individuals who rely on Medicaid—and increase out-of-pocket costs for the sickest and oldest among us. We are alarmed by recent harmful changes to the AHCA, including provisions that will weaken key consumer protections. These changes include allowing states to waive the requirement for essential health benefits, which could deny patients the care and treatment they need to treat their conditions.

Another change allows states to waive protections against health status rating. Weakening these rules would enable insurers to charge higher prices to people with pre-existing conditions, possibly making insurance unaffordable for those who need it most.

States that waive health status rating protections would be required to set up a high risk sharing program, which may include a high-risk pool. Offering these risk sharing mechanisms as an alternative to affordable health insurance is not a viable option, particularly high-risk pools. Previous state high risk pools resulted in higher premiums, long waiting lists and inadequate coverage.

Weakening protections in favor of high-risk pools would also undermine the ban on discrimination based on health status. The individuals and families we represent cannot go back to a time when people with pre-existing conditions could be denied coverage or forced to choose between purchasing basic necessities and affording their health care coverage. Given these factors, we oppose the latest draft of the AHCA. We urge Members of Congress to reject this legislation.

As Congress considers this legislation, we challenge lawmakers to remember their commitment to their constituents and the American people to protect lifesaving health care for millions of Americans, including those who struggle every day with chronic and other major health conditions. We stand ready to work with Congress toward a proposal that ensures all Americans have affordable access to the care they need.

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Media Contacts:

American Cancer Society Cancer Action Network 
Alissa Crispino 
alissa.crispino@cancer.org  
202-661-5772

American Diabetes Association 
Michelle Kirkwood 
mkirkwood@diabetes.org   
703-299-2053 

American Heart Association 
Abbey Dively 
Abbey.dively@heart.org  
202-785-7905 

American Lung Association 
Allison MacMunn 
media@lung.org  
312-801-7628 

Cystic Fibrosis Foundation 
Jessica Rowlands 
jrowlands@cff.org  
240-482-2857 

JDRF 
Christopher Rucas 
crucas@jdrf.org  
212-479-7667 

March of Dimes 
Cindy Pellegrini 
mediaadvocacy@marchofdimes.org  
202-659-1800 

National Organization for Rare Disorders 
Jennifer Huron 
jhuron@rarediseases.org  
(203) 304-7528 

National MS Society 
Eileen Curran 
eileen.curran@nmss.org  
617-719-3202 

WomenHeart: The National Coalition for Women with Heart Disease 
Tom Murphy 
tmurphy@womenheart.org  
202-464-8781