Groundswell of support for Atrial Fibrillation research leads to $15.75 million in philanthropic giving

New research centers will be named for donors, Soter and Chlapaty

May 15, 2018 Categories: Program News

DALLAS, May 15, 2018 The American Heart Association—the world’s leading voluntary organization dedicated to building healthier lives, free of cardiovascular diseases and stroke—announced today a $5.2 million donation from Sarah (Sally) Ross Soter and her husband, Bill and a $6.25 million donation from Joe and Linda Chlapaty. A large portion of each of these gifts will fund new centers within the Association’s Strategically Focused Research Network for Atrial Fibrillation along with funding to create an immediate health impact in each of their local communities.

There are 6.1 million people living with the uncertainty of Atrial Fibrillation (AFib) in the U.S., including both Mrs. Soter and Mr. Chlapaty, and that number is expected to double by 2030.1 AFib is the quivering or irregular beat in the heart’s upper chambers, which increases the risk of blood clots and left untreated, AFib doubles the risk of heart-related death and increases a person’s chance of having a stroke fivefold.

The Sarah Ross Soter Center for AFib, will help find answers to critical questions to improve health outcomes for those living with AFib and support collaborative grants across the network. The Joe and Linda Chlapaty Center will be home to a second Decision-making and Choices to Inform Dialogue and Empower A-Fib Patients (DECIDE) Center within the Atrial Fibrillation (AFib) Strategically Focused Research Network.

The first DECIDE Center was established through support from the Patient-Centered Outcomes Research Institute (PCORI) and by a gift from keen supporters of the Association, David and Stevie Spina of Massachusetts. Both these DECIDE Centers will leverage comparative effectiveness research to test and deliver shared decision-making tools for clinicians and patients to use together to determine which treatment options will work best to provide the desired outcomes for each individual patient and ultimately improve patients’ lives for this far too common heart abnormality. Patients’ strong interest in the topic of stroke treatment and prevention in patients with atrial arrhythmias was demonstrated via a crowdsourcing initiative through which AHA and PCORI sought patients’, families’, and clinicians’ input on research priorities.

Combined, these gifts represent $15.75 million to the AFib Strategically Focused Research Network in outright philanthropic support. 

“The American Heart Association is so grateful and incredibly humbled by the most recent generosity of these deeply personal gifts from longtime supporters, Sally and Bill Soter, and Joe and Linda Chlapaty,” American Heart Association CEO Nancy Brown said. “The centers will bring needed attention and funding that will ultimately help the millions, like Sally and Joe, living with AFib and improve their quality of life.”  

Mrs. Soter, an active Palm Beach community volunteer who’s passionate about improving healthcare by accelerating science, hopes her gift will benefit generations to come through advancement in discovery. This gift is another example of the extraordinary action she is taking. Soter was the inaugural funder to the American Heart Association’s Go Red For Women Research Network in 2015. Soter’s dedication to her community led to earmarking $200,000 to specifically support the Better U lifestyle improvement program in Palm Beach.

Mr. and Mrs. Chlapaty are longtime philanthropists in Columbus, Ohio, most recently demonstrating their commitment to building healthier lives in their hometown by chairing the Heart Ball where they announced $750,000 of their $6.25 million gift would directly impact Columbus residents.

The Association is reviewing applications for the AFib Strategically Focused Research Network which will launch this July. The Association’s recent Scientific Statement discusses the research gaps related to the AFib burden along with future directions for research. Visit the Strategically Focused Research Network for more information.

1Heart Disease and Stroke Statistics-2017 Update

###

About the American Heart Association

The American Heart Association is devoted to saving people from heart disease and stroke – two of the leading causes of death in the world. We team with millions of volunteers to fund innovative research, fight for stronger public health policies, and provide lifesaving tools and information to prevent and treat these diseases. The Dallas-based association is one of the world’s oldest and largest voluntary organizations dedicated to fighting heart disease and stroke. To learn more or to get involved, visit heart.org or call any of our offices around the country. Follow us on Facebook and Twitter.

For Media Inquiries: 214-706-1173

Jennifer Pratt: 214-706-2229; Jennifer.Pratt@heart.org 

For Public Inquiries: 800-AHA-USA1 (242-8721)

heart.org and strokeassociation.org