ALBANY, May 15, 2024 — His volunteer work with the American Heart Association,  a global force for healthier lives for all, started in 2013, when he was just 2 years old, and he and his family joined a group of advocates at the New York State Capitol urging legislators to pass the Pulse Ox Law. Those efforts were successful, and since then, every newborn has their oxygen level tested before they are discharged from the hospital. A low oxygen level could show a critical congenital heart defect.

That was just the beginning of Colton Berlin’s involvement with the American Heart Association. The 12-year-old Mayfield boy and his family are regular participants in the Capital Region Heart Walk, and have been to the Capital Region Heart Ball. Colton is an active member of the Cardiac Kids group in the Capital Region, and has spoken to school assemblies as part of the Kids Heart Challenge, as well as regional boards of directors of the Heart Association. He has thrown out the first pitch at a Valley Cats game, and he’s used to talking with reporters.

This year, he is the Heart Hero of the 2024 Capital Region Heart Walk and Run set for June 2 at the W. Averell Harriman State Office Building Campus in Albany.  

“I like to be involved with the Heart Association because it’s fun to be able to spend time with other kids like me,” Colton said. “I think the events the Cardiac Kids put on are great. I also think it is important to help raise awareness nd research for heart defects.”

Colton’s mom, Melissa Berlin, had a normal pregnancy and Colton seemed healthy when he was born.

“At his well-baby checkup one week after he was born, we found out he was in heart failure, when he started to turn blue in the pediatrician’s office,”  Melissa Berlin said.  Colton was transported to Albany Medical Center, an hour away, and became very sick.

“We learned that he had been born with hypoplastic left heart syndrome, which means that the left side of his heart hadn’t formed correctly. He was missing his left ventricle, the main chamber of his heart,” Melissa Berlin said. “He was in the NICU where he had a stroke, multisystem organ failure, and other complications. When he was 12 days old, he was stable enough to have his first open-heart surgery.”

Colton was in the Pediatric Intensive Care Unit for a month before he could go home. He had a cardiac catheterization and a second open-heart surgery between seven and eight months old. He had a third open-heart surgery when he was two-and-a-half years old.

“Looking back now at our journey with Colton,  I often think about what a scary time it was for us, when our son was going through his procedures in the early part of his life,” Melissa Berlin said. “It is easy to feel alone, not to know what to expect and to be terrified for your child's future. Having the Heart Association and other parents available to us through groups and events they provide, has really helped us in this regard. Also, it is relieving to know that with research and medical advancements happening every day, our child's future looks much brighter and different than it may have not long ago.

“Today, Colton is a golfer, a wakeboarder, plays soccer and basketball, loves his dogs, and is a good student,” Melissa Berlin said. “Had we not gone to the doctor that day, there’s a definite possibility that Colton wouldn’t be with us today. We are forever grateful to the American Heart Association, which has allowed us to do outreach in our community with other families like ours, and to make connections with people who are in similar situations. Colton is our heart hero every day, and we are happy to share his story as part of the  Capital Region Heart Walk.”

To join Colton at the Capital Region Heart Walk and Run, visit www.CapitalRegionHeartWalk.org. To learn more about Colton’s story click here.

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About the Capital Region Heart Walk and Run

The 2024 Capital Region Heart Walk and Run, taking place in the Centennial year of the American Heart Association, is set for Sunday, June 2, at the W. Averell Harriman State Office Building Campus, 1220 Washington Ave., Albany. Dorothy Urschel, president and CEO of Columbia Memorial Health, and Jill Johnson VanKuren, president and CEO of Saratoga Hospital, are chairing the event. Wanda Feaster is the Stroke Ambassador and 11-year-old Colton Berlin of Mayfield is the Heart Hero. Albany Med Health System is the Live Fierce sponsor. Broadview is the platform sponsor. Media sponsors are CBS 6, the Times Union and B 95.5. For information and to register, visit www.CapitalRegionHeartWalk.org.

About the American Heart Association

The American Heart Association is a relentless force for a world of longer, healthier lives. We are dedicated to ensuring equitable health in all communities. Through collaboration with numerous organizations, and powered by millions of volunteers, we fund innovative research, advocate for the public’s health and share lifesaving resources. The Dallas-based organization has been a leading source of health information for a century. During 2024 - our Centennial year - we celebrate our rich 100-year history and accomplishments. As we forge ahead into our second century of bold discovery and impact our vision is to advance health and hope for everyone, everywhere. Connect with us on heart.org, Facebook, X or by calling 1-800-AHA-USA1.   

For National Media Inquiries: 214-706-1173

For Local Media Inquiries: Katherine McCarthy, Sr. Marketing Communications Director, New York State, 518.366.7920 or Katherine.McCarthy@heart.org

For Public Inquiries: 1-800-AHA-USA1 (242-8721)

heart.org and stroke.org