Washington, D.C., December, 17 2018 — Following Friday’s ruling in the case of Texas v. United States, which found all of the Affordable Care Act to be unconstitutional, 38 patient groups issued the following statement:

“Our organizations, which collectively represent millions of patients, are disturbed by the troubling ruling that invalidates the entirety of the Affordable Care Act.  This ruling eliminates the critical protections for people with pre-existing conditions who need adequate, accessible and affordable health care to live longer, healthier lives.

“In eliminating the ACA penalty for individuals who are not insured, Congress did not intend that individuals could once again be charged more or denied coverage for their health conditions, face limits on their care, be rejected entirely by health insurers, or be subject once again to annual and lifetime coverage caps. The implications of this decision are serious for both the insurance markets and the millions of people who rely on them.

“It is important for patients and consumers to realize that current law remains in place pending appeal. People who have purchased healthcare for 2019 from healthcare.gov will remain covered, and the millions of Americans who have coverage through Medicaid expansion will also remain covered. 

“Our communities know the importance of insurance coverage and are all too familiar with the harm that will come if insurers were to return to coverage and pricing practices that discriminate against people with pre-existing conditions and fail to cover the services they need.

“When the ruling is appealed, we hope that the United States Court of Appeals for the Fifth Circuit will protect health care for people with chronic diseases.”


Adult Congenital Heart Association

Alpha-1 Foundation

ALS Association

American Diabetes Association

American Heart Association

American Liver Foundation

American Lung Association

Arthritis Foundation

Cancer Support Community

COPD Foundation

Crohn’s & Colitis Foundation

Cystic Fibrosis Foundation

Epilepsy Foundation

Family Voices

Futures Without Violence

Global Healthy Living Foundation

Hemophilia Federation of America

Immune Deficiency Foundation


Leukemia & Lymphoma Society

Lutheran Services in America

March of Dimes

Muscular Dystrophy Association

National Alliance on Mental Illness

National Coalition for Cancer Survivorship

National Health Council

National Hemophilia Foundation

National Kidney Foundation

National Multiple Sclerosis Society

National Organization for Rare Disorders

National Patient Advocate Foundation

National Psoriasis Foundation

Pulmonary Hypertension Association

Susan G. Komen

The Kennedy Forum

United Ostomy Associations of America

United Way Worldwide

WomenHeart: The National Coalition for Women with Heart Disease